Dealing with Dementia

Today I am focusing on the many challenges of dealing with dementia. For anyone looking for a scientific based posting, this is NOT it. Instead, these are my personal reflections of coping with the dementia my loved one faces. Thus, I am writing anecdotally, but perhaps you will find my experiences helpful.

Brain Changes

As a layman, I find the workings of the brain fascinating. The brain is the control center for our bodies. Thus, we cushion the heads of babies, wear helmets if playing football or riding cycles, hard hats on construction sites and numerous other activities in the hope of preventing damage to the brain.

The brain can be impacted by other factors. I have read several of Dr. Daniel Amen’s books on the brain. His books, Change Your Brain Change Your Life (1996) and Change Your Brain Change Your Body (2010) were life changing for me as well as one of my offspring. Amen details how diet and exercise can affect the brain in addition to brain injury. Click here to visit his website.

Personality Changes

I have a hard time grasping the science behind how changes to the brain affect changes to one’s personality. But, I believe this to be true. My family member has not gone silent like so many. However, her sentences are non-sequitur at best. Under the worst of circumstances she makes absolutely no sense and gets frustrated if you cannot follow her thoughts. I get frustrated too. And very sad.

On the other hand, she still has a great smile and she smiles often. Furthermore, she continues watching TCM and the old movies with enjoyment. Recently we watched the version of Seabiscuit with Shirley Temple. She was fully engaged to the point of skipping the ice cream hour. She always enjoyed going to the races at Tampa Bay Downs so she connected to the movie.

Other changes revolve around games. Board games and card games were favorite past times. The whole family could spend hours playing Spinners and she belonged to multiple bridge clubs. But now the attention span needed to play is gone. Participation is limited to games where she can be guided.

Role Reversal

Individuals who are dealing with dementia in a parent also deal with a role reversal. This is my case. I have the power of attorney and am second in line as health advocate. Care decisions are stressful. As a result, I am already planning for my future. Just in case.